small wonder

Today I will be going with my book group to see this event, which is part of the Small Wonder festival at Charleston.  I have just looked at the site and seen that one of the contributors, M. J. Hyland, will not after all be there.  I am disappointed.  This morning I read her very good piece in Granta magazine where she talks about her experience of M.S.  - of how she felt impelled to keep the illness a secret and how, until now, she has not written anything about M.S.  I was struck by the relationship she has with her very wretched and dysfunctional family, for whom she feels a profound sadness.  She says,

"I can't be near them, can't belong to them.  I worry for them, dream about them, but I can't talk to them.  They frighten me."

She says that "having MS felt tantamount to losing, and felt too close to being like them; a failure and a victim."

Hence her response, which was to keep it a secret.

What she says resonates; not because it echoes my particular way of coping with a chronic disease (though there have been periods I attempted to keep the fact of my M.E. a secret) but because I have known for a long time that people are frightened by illness and disease and feel much the same way about people with ME as M.J. Hyland feels about her family.  The fact that most of us are not (yet - the time may come, given enough research) able to Win The War against it, that it just goes on and is something to be negotiated and endured, does not help.

What a catastrophe, then, it must have been to join the ranks of the 'failures' and 'victims'.  How I would like to have heard her speak about it.  But I am pleased to be going.  A.L. Kennedy will be one of the contributors.  A friend will be driving.  I like visiting Charleston, even though it is rarely a comfortable experience (today we will be in a barn, must wrap up warm).

Cafetiere

                                                You reach for me first thing,

                                                warm my body and wait.

                                                I hold the heat and watch you

                                                watching me. Give me two,

                                                give me three of your fragrant

                                                Ethiopian or Macchu Piccu

                                                fed by the rain-washed forest.

                                                Give me water from the boil

                                                and wait.

                                                You fill me up,

                                                I give it to you straight,

                                                you drink my hot black nectar,

                                                bittersweet, it moves into your blood,

                                                it makes heart beat and beat.

                                                One hour later you come back..

                                                Repeat, repeat, repeat.

I take no responsibility for this - it's the Cafetiere speaking, I was just the scribe.  Obviously it's speaking to me and we have, as you can see, something of a dark relationship, on account of the coffee which I shouldn't go near.  It behaves like all the demon lovers your mother should have warned you about - lifts you up high and then dumps you, but you keep coming back for more.  Here, you see the pot is almost empty and there is a whole shiny day ahead of me when anything might be possible.  

At this point, though, we are heading close to the less exuberant time of 3pm, which a friend has aptly named Crucifixion Time.  The coffee elevation has all gone and it is just me, running on pure water and perhaps a cup of herbal tea.  And Mr. Signs is at the pub sending me text messages saying that Arsenal are losing the match and could I do something about this?  

In The Teeth (3)

Well, one knew at the outset that when committing to the post-a-day task there would be days when it might feel better to say nothing at all.  This is one of those.  Let the facts speak for me:

I have been to darkest Kent to visit the dentist, an hour's journey each way, plus half an hour in gridlocked traffic.

I made this journey because the dentist has the virtues of being good at what he does and sensitive to one's condition.

I have paid £120 for him to fix something on a tooth restoration.

The thing he fixed has just broken off.

It is probably my fault for biting my nail too vigorously.

I will have to do it all again next week.

But I may not have the wherewithal.

Post-exertional exhaustion does not necessarily give one a good perspective on this kind of thing.

Be seeing you.

singing each to each

I had cards today.  This one arrived early so was the first that I opened.  Inside, the message that wished me a happy birthday said, "may the seals sing to you", which I read as auspicious.  Somewhere in the far North of Scotland, a seal once put its head out of the water and looked at me.  If there had been more time, I believe I may have caught its song.  I am not like the narrator in the The Lovesong of J. Alfred Prufrock who has "heard the mermaids singing each to each" and does not believe they will sing to him.  I have written stories about silkes and mermaids and it is only a matter of time.  But if you look closely at the picture, it becomes clear that the seals here are the audience.  St. Cuthbert is singing to them and the title of the picture (artist Colin Smithson) is 'St. Cuthbert Sings to the Seals'.  The question is whether the seals came close to the saint, drawn by his singing, or whether he began to sing in response to their presence.  Either seems good, but I suspect it is probably the former because he has brought his banjo with him.  The Sign is clear: the seals want my song just as much as I want theirs.  I don't have a banjo, but I have a voice. It is true that I live on the edge of a forest (and sometimes by the sea, but not one where seals come very often, if at all) but this should not be a problem.  If you sing with true intention they hear you, the creaturely familiars, wherever they be on land or in the sea.  

Potage

One of those days when it did not seem possible to move from a lying-down position for a couple of hours after waking, and the view through wooden slats much the same as it was a couple of posts back.  Just to keep you fully in the picture.  After this, the only possible thing to do was to make vegetable soup.  In fact, I will go out on a limb here and say that When In Doubt Make Soup is probably good for almost any situation - as long as you are fit enough and able to remain in an upright, preferably standing, position for as long as it takes to make it which, as you can see, I was.  

There is some small fame attached to the pot, which dates back to the years of my first marriage and about which I once wrote a poem.

Steel Pot

This was my first wedding gift,

a steel pot with black plastic handle,

nothing showy, nothing to show

but empty space and a dull shine.

We made Russian toffee which

blackened and burned, I battered it with knives

and wire wool, I made my mark,

three days I left it in the rain,

It was gentle with eggs,

imaginative with lentils, kind to milk,

rice it loved best, it kept a little back,

a nutty crust we peeled and ate like bread,

the grains were patterned on its metal skin.

Steel is hard and true, people

come and go, my young husband

went north with a broken heart,

three days I waited, but

you can’t scratch marks from hearts

once you have burned them.

I walked into the wilderness,

a knife in my pocket and a wooden spoon.

The steel pot was my hearth,

I sang into its empty space

like my grandmother’s mother

who could (as they say) make soup

by singing into a pot,

and just as well.

I lean and look inside and still

it gives my reflection back to me.

Birdie

This is the bird that hangs on a thread from the study window and looks out over the back garden. If not the thing with feathers that perches in the soul, then its close familiar; crude, perhaps, if compared to a living bird, but expressive of something. It has been put together from flotsam and jetsam scraps of material, wire, twigs and feathers from the natural world. On its breast is a red flower (plastic) and a sequin, which catches the light. It is ready for something. Look at those antennae, the blush of pink at the base of the tail feather, the raised wings and the splayed feet. From day to day, no-one sees it but me. If I don't project some measure of hope and joy onto its brittle frame, how can it live at all? And doesn't it deserve to? Perhaps not (perhaps nothing does?) but I won't be the one to put it in black bin bag hell with all the unredeemed clutter. If I say it is alive, then it is. And I do say it.

Presence

                                                                               

It is three months until Christmas. This is not about shopping. You know about me and shopping and how the word has always conjured up an image of a basket with bread, milk, potatoes and eggs. These days one should probably add a tub of blueberries, a head of broccoli and a bag of carrots and take away the bread, the point being that this is all shopping means to me. Getting a basketful of the daily stuff. So when I say it is three months until Christmas, what I am doing is looking across the divide separating that time from this and wondering how, in the unsteady vessel that is the body of Signs, I will navigate the distance from now to then.

The same kind of thought sometimes comes at the very beginning of the day, as I open my eyes to the bands of light that filter through my trusty wooden slats (I call them trusty because they cost so little, being from IKEA, they have fulfilled their task so remarkably well and I have looked at them and through them with more intense engagement than is usual in a relationship between a human being and a set of window blinds). My first question is: what is the weather doing? This may or may not be significant in what I am able to do that day, but to know about it gives one some kind of connection to the world outside. What would our lives be without windows? It doesn't bear thinking about.

The next question, directed not so much at the window as to the day itself, is: what can I do today? Sometimes the answer that comes back is simply a list of boxes that need, by hook or by crook, to be ticked off. Get cat food, meds from chemist, post letter, ring dentist, do a washload, make evening meal. Choose from one or some of the above, or pick up the notebook.

Today (which is no longer newborn but not yet old) I have been to buy organic vegetables and I have come here to say that it is ninety-one days until Christmas Eve. And I am thinking that to come here every day and post something on blog until the day of the Eve itself would be something, wouldn't it? Not just a falling away - a journey to Advent. Parousia.  Or at any rate - something.