tag:blogger.com,1999:blog-6432201290620111119.post8423817025719675280..comments2023-11-02T15:27:57.223+00:00Comments on Reading the Signs: My Dark PassionReading the Signshttp://www.blogger.com/profile/06338983880105866139noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-6432201290620111119.post-44028823922283098332007-01-26T12:44:00.000+00:002007-01-26T12:44:00.000+00:00Actually, that chocolate would do nicely right now...Actually, that chocolate would do nicely right now as I wait for the boiler repair man! Yeah, the plasma exchange was vile, but I was so young (20) & so ill & it was the dark year of 1984, no one had a clue about the illness & you just trusted what the neurologist said . . .you poor thing, Prozac for muscle fatigue? I know the old tricyclics have anti-inflammatory properties, but hadn't heard of Prozac helping with fatigue. I wouldn't go near it!nmjhttps://www.blogger.com/profile/05477643084619789093noreply@blogger.comtag:blogger.com,1999:blog-6432201290620111119.post-19605697693124004652007-01-26T09:50:00.000+00:002007-01-26T09:50:00.000+00:00you are right of course, nmj, that there needs to ...you are right of course, nmj, that there needs to be proper study and I wasn't for a moment suggesting I thought of this as potential cure.I suppose I was trying to express a kind of vulnerability (this, I think, rather than optimism) I still have to something that might help with symptoms - at the crudest level. Your clinical trials sound very scary. My scariest trial was Prozac. They said that "trials" (clinical?) had suggested it helped significantly with muscle fatigue. It nearly made me bonkers. At least the chocolate won't do that. I'll keep you informed.Reading the Signshttps://www.blogger.com/profile/06338983880105866139noreply@blogger.comtag:blogger.com,1999:blog-6432201290620111119.post-65330775103362248962007-01-26T08:44:00.000+00:002007-01-26T08:44:00.000+00:00Oh dear, Signs, You are more optimistic than me ab...Oh dear, Signs, You are more optimistic than me about the chocolate, I blogged about this trial a while back and I was not very optimistic. Perhaps I am too battle-weary, but I think until they truly get their biomedical acts together and get to the bottom of the pathology of the illness, we have no cure. I too have tried everything, plus quite scary clinical trials inc. a plasma exchange with steroid therapy which made me much worse. The only things which have helped slightly were ACTH injections, and, later, intravenous vitamin C. But, of course, any improvement, no matter how slight is worth it. Maybe there is something in the chocolate. Who the hell knows.nmjhttps://www.blogger.com/profile/05477643084619789093noreply@blogger.com